Alice Runs for FD!

by Familial Dysautonomia Foundation

I love to run because I am passionate about being active - it is my time to meditate, it keeps me sane, and gives me an excuse to eat whatever I want. As a doctor, I also understand the long-term benefits running and exercise have on my health. This year, I am running for those who are unable to run, the patients in the FD community.


I first learned of familial dysautonomia (FD) when my father became involved with the Familial Dysautonomia Foundation’s Scientific Advisory Board. Through conversations with him, I learned about the devastating symptoms these patients manage – unstable blood pressure, digestive and vision problems, and insensitivity to pain just to name a few. Despite this adversity, they manage to remain positive and up-beat. 


The FD community is the reason I will be taking on the United Airlines NYC Half Marathon on March 15, 2020. Their grit through the toughest days has inspired me to run 13.1 miles and raise money to fund medical care and scientific research. I need your help to reach my goal and make an impact on all those afflicted by FD, hopefully one day leading to a cure.


Together we can make a difference for those living with FD.



Familial Dysautonomia (FD) is a rare genetic disorder that affects the autonomic and sensory nervous systems. Symptoms include: insensitivity to pain, absence of tears, unstable blood pressure and body temperature, respiratory, digestive and vision problems. Though FD affects people across the world it occurs almost exclusively in people with Ashkenazi Jewish heritage. FD is inherited in an autosomal recessive manner when both, otherwise healthy parents, pass on their copy of a mutated IKAP gene to their unborn child. For more information visit www.famdys.org.

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