FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients.  

You can Participate by Giving 20. 

Did you know that the gene mutation that causes FD/MAS is found on the 20th chromosome? Give $20 to support the programs and initiatives that will help us understand and fight that mutation! 

Find other opportunities to share your thoughts and join the fight by following us on Facebook

Your voice, your vision, and your gift can make a meaningful difference in how far and how fast we’re able to advance our fight. Help us make this week a week of action, awareness, and progress.

Fibrous dysplasia and McCune-Albright syndrome (FD|MAS) is a rare disease that can cause a wide range of issues. It is genetic, but it is not inherited from family and cannot be passed down. It can be traced to a single random mutation that occurs in the womb as a fetus develops. Symptoms range from mild to severe, and people living with FD|MAS can live full and prosperous lives. There is no cure, however, and there are no treatments to stop or slow a major symptom of the disease, the growth of malformed bones. These malformed bones cause chronic pain, weak bones that are easy to fracture, and differently-shaped bodies. Patients turn to a range of stopgap treatments, like multiple surgeries, hormonal therapeutics, and medical device implants to try and manage their disease.

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FD/MAS Global Awareness Week

by Fibrous Dysplasia Foundation


FD/MAS Global Awareness Week is a coordinated international campaign to raise awareness of fibrous dysplasia and McCune-Albright syndrome (FD/MAS) and build support for public health and research that will improve the lives of FD/MAS patients.  

You can Participate by Giving 20. 

Did you know that the gene mutation that causes FD/MAS is found on the 20th chromosome? Give $20 to support the programs and initiatives that will help us understand and fight that mutation! 

Find other opportunities to share your thoughts and join the fight by following us on Facebook

Your voice, your vision, and your gift can make a meaningful difference in how far and how fast we’re able to advance our fight. Help us make this week a week of action, awareness, and progress.

Fibrous dysplasia and McCune-Albright syndrome (FD|MAS) is a rare disease that can cause a wide range of issues. It is genetic, but it is not inherited from family and cannot be passed down. It can be traced to a single random mutation that occurs in the womb as a fetus develops. Symptoms range from mild to severe, and people living with FD|MAS can live full and prosperous lives. There is no cure, however, and there are no treatments to stop or slow a major symptom of the disease, the growth of malformed bones. These malformed bones cause chronic pain, weak bones that are easy to fracture, and differently-shaped bodies. Patients turn to a range of stopgap treatments, like multiple surgeries, hormonal therapeutics, and medical device implants to try and manage their disease.