The entire fibrous dysplasia and McCune-Albright syndrome community mourns the loss of a beloved leader, Charles William Harles.  

Charlie recognized that having a rare disease can be isolating and leave you with many unanswered questions. Through the early power of the internet and list-serves a small group of people with fibrous dysplasia met at the Harles’ house in 2000. While soaking in the hot tub the group determined to form an association to spread information about fibrous dysplasia for individuals and medical professionals. In 2004 the dream was achieved with the incorporation of the Fibrous Dysplasia Foundation. Charlie served as its president for the next 11 years.

Charlie's impact on the FD/MAS community is evident in the incredible legacy of the FDF, the community that he helped build, and the research he encouraged. In lieu of flowers, Charlie's family asked that donations be sent to the Fibrous Dysplasia Foundation.

We are grateful for his vision, saddened by this loss, and determined to continue his legacy.

Read more about Charlie's life and legacy here.

Make A Donation

In Memory of Charlie Harles

by Fibrous Dysplasia Foundation


The entire fibrous dysplasia and McCune-Albright syndrome community mourns the loss of a beloved leader, Charles William Harles.  

Charlie recognized that having a rare disease can be isolating and leave you with many unanswered questions. Through the early power of the internet and list-serves a small group of people with fibrous dysplasia met at the Harles’ house in 2000. While soaking in the hot tub the group determined to form an association to spread information about fibrous dysplasia for individuals and medical professionals. In 2004 the dream was achieved with the incorporation of the Fibrous Dysplasia Foundation. Charlie served as its president for the next 11 years.

Charlie's impact on the FD/MAS community is evident in the incredible legacy of the FDF, the community that he helped build, and the research he encouraged. In lieu of flowers, Charlie's family asked that donations be sent to the Fibrous Dysplasia Foundation.

We are grateful for his vision, saddened by this loss, and determined to continue his legacy.

Read more about Charlie's life and legacy here.