Support the FD/MAS Registry for a year!

by Fibrous Dysplasia Foundation

The Rozenblum Family is generously offering to match the next $15,000 raised to support the FD/MAS Patient Registry and our fight against this horrible disease.

Why the Registry? One of the Foundation’s missions is to encourage research and find treatments and a cure for FD/MAS. The Patient Registry is one of the most important contributions toward that goal. In fact, our contacts in pharmaceuticals have named a robust Patient Registry as one of the most important factors for developing clinical trials for therapeutics.

The Registry can serve as the go-to resource for designing studies, recruiting participants and discovering similarities among FD/MAS patients. Our Registry has over 1,000 participants and 200,000 data points, and researchers are interested. A strong patient registry is a keystone in our path towards better answers and better outcomes, but it takes our continued support to maintain that path and that resource.

Read about the Rozenblum's son, Jonathan, and how he inspired his parents.

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