Team FD/MAS is Rallying to Support Research

Because FD/MAS Patients Need and Deserve Better Treatments  

Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare and debilitating disease that has no FDA-approved treatment. It causes fibrous tissue to grow in place of healthy bone and often causes chronic pain, loss of mobility, hormonal imbalances, skin marks, deformity, and more. There is no cure and no way to slow the disease down.


In six years, Team FD/MAS has raised close to $750,000 for FD/MAS research through the UPenn Orphan Disease Center's Million Dollar Bike Ride (MDBR) thanks to Team Captain Cindi Brandt Levin, the Levin family, the FD/MAS Alliance, and the FD/MAS community. These research grants are focused on developing a deeper understanding of the disease and finding better treatments (and someday a cure)!

All registration fees will go directly to FD/MAS research grants through UPenn. Subsequent donations are split between the FD/MAS research grants (80%) and the FD/MAS Alliance (20%) to support our organization’s key programs and infrastructure. These programs include the FD/MAS Patient Registry to facilitate research, and continued advocacy work to unlock potential monumental FD/MAS research funding as part of the Department of Defense’s Peer-Reviewed Medical Research Program (PRMRP).


Team FD/MAS Is Coming Together Virtually During COVID-19, and we invite YOU to be part of the 2021 FD/MAS VIRTUAL TEAM!  We'd love for you to register as part of Team FD/MAS too! Learn more here.

If you have any questions about your donation or would like to set up your own fundraiser, email Executive Director Adrienne McBride, ambride@fibrousdysplasia.org, and she'll be happy to set up a time to chat with you. 

PS. Many employers match charitable donations made by employees like you. Consider checking if your employer will double your donation.  Be sure to reference or note Team FD/MAS in your gift so that your contributions are allocated appropriately. And thank you!


We are rare, but we are not alone, and we are determined to advance change.


Many Thanks to All Our Supporters!


Make A Donation

Team FD/MAS and 2021 Virtual Million Dollar Bike Ride for FD/MAS Research!

by Fibrous Dysplasia Foundation dba FD/MAS Alliance


Team FD/MAS is Rallying to Support Research

Because FD/MAS Patients Need and Deserve Better Treatments  

Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare and debilitating disease that has no FDA-approved treatment. It causes fibrous tissue to grow in place of healthy bone and often causes chronic pain, loss of mobility, hormonal imbalances, skin marks, deformity, and more. There is no cure and no way to slow the disease down.


In six years, Team FD/MAS has raised close to $750,000 for FD/MAS research through the UPenn Orphan Disease Center's Million Dollar Bike Ride (MDBR) thanks to Team Captain Cindi Brandt Levin, the Levin family, the FD/MAS Alliance, and the FD/MAS community. These research grants are focused on developing a deeper understanding of the disease and finding better treatments (and someday a cure)!

All registration fees will go directly to FD/MAS research grants through UPenn. Subsequent donations are split between the FD/MAS research grants (80%) and the FD/MAS Alliance (20%) to support our organization’s key programs and infrastructure. These programs include the FD/MAS Patient Registry to facilitate research, and continued advocacy work to unlock potential monumental FD/MAS research funding as part of the Department of Defense’s Peer-Reviewed Medical Research Program (PRMRP).


Team FD/MAS Is Coming Together Virtually During COVID-19, and we invite YOU to be part of the 2021 FD/MAS VIRTUAL TEAM!  We'd love for you to register as part of Team FD/MAS too! Learn more here.

If you have any questions about your donation or would like to set up your own fundraiser, email Executive Director Adrienne McBride, ambride@fibrousdysplasia.org, and she'll be happy to set up a time to chat with you. 

PS. Many employers match charitable donations made by employees like you. Consider checking if your employer will double your donation.  Be sure to reference or note Team FD/MAS in your gift so that your contributions are allocated appropriately. And thank you!


We are rare, but we are not alone, and we are determined to advance change.


Many Thanks to All Our Supporters!