The Health Advocacy Summit is a nonprofit that facilitates no-cost events and programs to empower adolescents and young adults living with chronic and rare diseases. The burden of chronic disease in adolescence is increasing as more chronically ill children survive beyond the age of 10. Individuals diagnosed as children or young adults face a lifetime of illness, the impact of which has not received adequate attention. Currently, there are very few systems in place to address the undeniably serious needs of young adult patients. We are a grassroots organization led entirely by young adults with chronic medical disabilities. Our passion for the work that we do is fueled by our lived experiences and we are determined to ensure a better future for this and the next generation of patients.

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Health Advocacy Summit



The Health Advocacy Summit is a nonprofit that facilitates no-cost events and programs to empower adolescents and young adults living with chronic and rare diseases. The burden of chronic disease in adolescence is increasing as more chronically ill children survive beyond the age of 10. Individuals diagnosed as children or young adults face a lifetime of illness, the impact of which has not received adequate attention. Currently, there are very few systems in place to address the undeniably serious needs of young adult patients. We are a grassroots organization led entirely by young adults with chronic medical disabilities. Our passion for the work that we do is fueled by our lived experiences and we are determined to ensure a better future for this and the next generation of patients.