A community-led 501(c)3 non-profit working to improve the lives of those with complex lymphatic anomalies: GLA/lymphangiomatosis, Gorham-Stout Disease (GSD), Kaposiform lymphangiomatosis (KLA) and central conducting lymphatic anomaly (CCLA).

We serve people affected by CLA through programs of research, education, and advocacy by

•    Providing up-to-date resources and a support network for patients and families

•    Working to build a clinical network for patients of all ages

•    Guiding and funding research by doctors and scientists

•    Powering the LGDA Patient Registry, an IRB-approved study

We invite you to contact support@lgdalliance.org for more information about how your donation helps.

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Lymphangiomatosis & Gorhams Disease Alliance



A community-led 501(c)3 non-profit working to improve the lives of those with complex lymphatic anomalies: GLA/lymphangiomatosis, Gorham-Stout Disease (GSD), Kaposiform lymphangiomatosis (KLA) and central conducting lymphatic anomaly (CCLA).

We serve people affected by CLA through programs of research, education, and advocacy by

•    Providing up-to-date resources and a support network for patients and families

•    Working to build a clinical network for patients of all ages

•    Guiding and funding research by doctors and scientists

•    Powering the LGDA Patient Registry, an IRB-approved study

We invite you to contact support@lgdalliance.org for more information about how your donation helps.