When a family member, friend, or even if you are diagnosed with a rare disease, wouldn’t you like to have access to information and support programs to help you understand it?

Did you know that one out of every 10 Americans is living with a rare disease? Myositis is subclassified into several rare diseases, which collectively affect an estimated 50-75K people in the U.S. These are the idiopathic inflammatory myopathies, generally referred to as myositis.

At MSU, we provide vital financial assistance for patients with sporadic inclusion body myositis, dermatomyositis, immune-mediated necrotizing myopathy, juvenile dermatomyositis, antisynthetase syndrome, and polymyositis.

Join us in our year-end giving campaign. No gift is too small - a $5 gift will help us reach our goal! Easily make it a monthly donation and contribute all year long! We are a nonprofit built with a lot of $5 and $10 donations. A $5 donation truly does help, so proudly make a $5 donation if that is what you are able to do. Give 5 with Pride!

We urge you to donate to help us fund and expand our financial assistance program and patient-led research initiatives on things that matter most to patients.

Since late 2016, we have provided over $150K in financial assistance to help myositis patients pay medical bills and cover costly off-label medications and infusion therapies, travel to see one of few myositis specialists, assisting with the cost of expensive assistive devices, and assisting with necessary living expenses like rent and electricity. With your contribution, we can help more people!

We are an all-volunteer 501(c)(3) nonprofit organization, so more of your donation goes directly to help patients. Be sure to ask your employer if they have a gift matching program. It’s an excellent way to double your donation and highlight giving and generosity beyond the myositis community.

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Giving for Myositis 2020

by Myositis Support and Understanding


When a family member, friend, or even if you are diagnosed with a rare disease, wouldn’t you like to have access to information and support programs to help you understand it?

Did you know that one out of every 10 Americans is living with a rare disease? Myositis is subclassified into several rare diseases, which collectively affect an estimated 50-75K people in the U.S. These are the idiopathic inflammatory myopathies, generally referred to as myositis.

At MSU, we provide vital financial assistance for patients with sporadic inclusion body myositis, dermatomyositis, immune-mediated necrotizing myopathy, juvenile dermatomyositis, antisynthetase syndrome, and polymyositis.

Join us in our year-end giving campaign. No gift is too small - a $5 gift will help us reach our goal! Easily make it a monthly donation and contribute all year long! We are a nonprofit built with a lot of $5 and $10 donations. A $5 donation truly does help, so proudly make a $5 donation if that is what you are able to do. Give 5 with Pride!

We urge you to donate to help us fund and expand our financial assistance program and patient-led research initiatives on things that matter most to patients.

Since late 2016, we have provided over $150K in financial assistance to help myositis patients pay medical bills and cover costly off-label medications and infusion therapies, travel to see one of few myositis specialists, assisting with the cost of expensive assistive devices, and assisting with necessary living expenses like rent and electricity. With your contribution, we can help more people!

We are an all-volunteer 501(c)(3) nonprofit organization, so more of your donation goes directly to help patients. Be sure to ask your employer if they have a gift matching program. It’s an excellent way to double your donation and highlight giving and generosity beyond the myositis community.