It's finally here: the first global, virtual, fun run/walk event to support SDS research.

With this fundraising campaign, we are raising funds to accelerate therapy and cure development for Shwachman-Diamond Syndrome, a rare genetic cancer predisposition disorder that affects thousands of children and adults world wide.

Our focus is on research that will eliminate any worries about leukemia in SDS, and deadly complication that currently affects up to 1 in 3 SDS patients. 

Technology has advanced tremendously over the last few years, and the time is NOW for all of us - the SDS community, family, and friends - to step up and invest in research that will solve the life threatening complications of SDS in a time frame that matters to our children and adults with SDS.

Join us. Donate today!

Make A Donation

One Million Steps Closer To #CureSDS

by Shwachman-Diamond Syndrome Alliance


It's finally here: the first global, virtual, fun run/walk event to support SDS research.

With this fundraising campaign, we are raising funds to accelerate therapy and cure development for Shwachman-Diamond Syndrome, a rare genetic cancer predisposition disorder that affects thousands of children and adults world wide.

Our focus is on research that will eliminate any worries about leukemia in SDS, and deadly complication that currently affects up to 1 in 3 SDS patients. 

Technology has advanced tremendously over the last few years, and the time is NOW for all of us - the SDS community, family, and friends - to step up and invest in research that will solve the life threatening complications of SDS in a time frame that matters to our children and adults with SDS.

Join us. Donate today!