Shwachman-Diamond Syndrome Alliance is a US based nonprofit organization serving the SDS community globally. Our mission is to #CureSDS. We will enable and accelerate cures and therapies  by 

  • investing into research and therapeutics development projects aligned with our research road map. Our primary goal for a cure is eradicating the leukemia risk in SDS
  • developing critical research tools (such as model system) and make them available to researchers anywhere
  • building a global patient data infrastructure accessible to qualified researchers everywhere, following the highest safety standards and compliant with GDPR and HIPAA
  • amplifying the patient voice in the drug development process and engaging with all stakeholders including industry partners and regulators
  • empowering patients and build patient communities, ready for clinical trials and development
  • enhancing and expanding collaborative research networks

 To learn more and to donate, please visit www.SDSAlliance.org.

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SDS Alliance to #CureSDS

by Shwachman-Diamond Syndrome Alliance


Shwachman-Diamond Syndrome Alliance is a US based nonprofit organization serving the SDS community globally. Our mission is to #CureSDS. We will enable and accelerate cures and therapies  by 

  • investing into research and therapeutics development projects aligned with our research road map. Our primary goal for a cure is eradicating the leukemia risk in SDS
  • developing critical research tools (such as model system) and make them available to researchers anywhere
  • building a global patient data infrastructure accessible to qualified researchers everywhere, following the highest safety standards and compliant with GDPR and HIPAA
  • amplifying the patient voice in the drug development process and engaging with all stakeholders including industry partners and regulators
  • empowering patients and build patient communities, ready for clinical trials and development
  • enhancing and expanding collaborative research networks

 To learn more and to donate, please visit www.SDSAlliance.org.