Shwachman-Diamond Syndrome Alliance is a US-based nonprofit organization serving the global SDS community. Our mission is to #CureSDS. We will enable and accelerate cures and therapies by

investing in research and therapeutics development projects aligned with our research road map. Our primary goal for a cure is eradicating the leukemia risk in SDS

developing critical research tools (such as model system) and make them available to researchers anywhere

building a global patient data infrastructure accessible to qualified researchers everywhere, following the highest safety standards and compliant with GDPR and HIPAA

amplifying the patient voice in the drug development process and engaging with all stakeholders including industry partners and regulators

empowering patients and build patient communities, ready for clinical trials and development

enhancing and expanding collaborative research networks

 To learn more and to donate, please visit www.SDSAlliance.org.

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Season of Giving to #CureSDS

by Shwachman-Diamond Syndrome Alliance


Shwachman-Diamond Syndrome Alliance is a US-based nonprofit organization serving the global SDS community. Our mission is to #CureSDS. We will enable and accelerate cures and therapies by

investing in research and therapeutics development projects aligned with our research road map. Our primary goal for a cure is eradicating the leukemia risk in SDS

developing critical research tools (such as model system) and make them available to researchers anywhere

building a global patient data infrastructure accessible to qualified researchers everywhere, following the highest safety standards and compliant with GDPR and HIPAA

amplifying the patient voice in the drug development process and engaging with all stakeholders including industry partners and regulators

empowering patients and build patient communities, ready for clinical trials and development

enhancing and expanding collaborative research networks

 To learn more and to donate, please visit www.SDSAlliance.org.