UNIFIED

Sun, Dec 6th 2020 at 12:00 PM EST · By Familial Dysautonomia Foundation
Date & Time
Sun, Dec 6th 2020 at 12:00 PM EST
to
Sun, Dec 6th 2020 at 2:00 PM EST
Event Details

JOIN US for an exciting VIRTUAL MUSIC FESTIVAL featuring some of today’s most popular and talented Jewish and Israeli performers.  

 

Your participation BENEFITS THE FAMILIAL DYSAUTONOMIA FOUNDATION, supporting care, treatment and research for people affected by this RARE JEWISH GENETIC DISORDER.


Familial Dysautonomia (FD) is an ultra-rare genetic disorder affecting the autonomic and sensory nervous systems. It strikes almost exclusively in those of Ashkenazi heritage. FD is an unpredictable disorder that affects nearly every organ of the body. Living with FD is a daily challenge for those who are affected, as well as their families. There is no cure for FD, but your support will help us find treatments that enable people with FD to live longer and better lives. To learn more, go to www.famdys.org

Register

Concert Ticket

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Reserve your spot for the virtual benefit concert
Quantity

Free

Sponsor this Event

Brass Section Sponsor

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Your name listed on all promotional materials related to the event, including website, eblasts, social media and press releases.

Your contribution helps subsidize medical care provided at the Dysautonomia Center that is not reimbursed by insurance.  Families are not billed for expenses not covered by insurance.

Quantity

$1,800

Percussion Sponsor

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Your name listed on all promotional materials related to the event, including website, eblasts, social media and press releases.

Your gift helps fund visits and consults (virtual or in person) with medical specialists, such a pulmonologist, who is trained in the unique challenges of caring for a person with FD.

Quantity

$3,600

Keyboard Sponsor

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Your name listed on all promotional materials related to the event, including website, eblasts, social media and press releases, as well as verbal recognition during the live event.

Your donation helps fund the cost of a Nurse Practitioner, a key member of the medical team who provides hands-on care for patients and is available 24/7 for emergency calls and consults.

Quantity

$5,400

Lead Guitar Sponsor

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Your name listed on all promotional materials related to the event, including website, eblasts, social media and press releases, as well as verbal recognition during the live event.

Your sponsorship will help support in-person or virtual Annual Visits at the Dysautonomia Center at NYU.  Patients from across the country and around the world consult the Center each year for check-ups that includes a medical assessment, visits with specialists and collection of critical data for the FD Natural History Study.

Quantity

$10,000

Presenting Sponsor

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UNIFIED, Presented by YOUR NAME”

Your name will have top billing on all promotional materials related to the event, including website, eblasts, social media and press releases.  Your sponsorship will be acknowledged verbally and visually throughout the live event.

Your investment will help fund clinical and scientific research currently underway to improve the lives of people affected by FD by easing distressing symptoms, slowing disease progression and someday finding a cure.

Quantity

$18,000

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