Navigating RARE During a Pandemic | 3-Day Online Event

Tue, Sep 15th 2020 at 7:30 PM EDT · By Jamal's Helping Hands
Date & Time
Tue, Sep 15th 2020 at 7:30 PM EDT
to
Thu, Sep 17th 2020 at 8:30 PM EDT
Event Details

Join us live: https://us02web.zoom.us/j/86046971083?pwd=azNaaVcySkYxMG1vNjhOTlUvd3FWQT09 For those of us with rare diseases, there has never been a “normal,” and this “new normal” of COVID-19 has thrown even more challenges at us.  


In our commitment to providing hope and help, we are hosting this webinar to aid you in navigating RARE during a pandemic.


Jamal’s Helping Hands will be hosting “Navigating RARE During a Pandemic” from September 15th to the 17th. This event is sponsored by Diversity Leadership Colloquium (DLC).


The speaker topics include:

  • How genetic testing and getting a genetic diagnosis is of value to rare disease patients 

  • Optimizing your health through proper self-care during the pandemic and beyond

  • Achieving access to Quality Medical Care

  • Patient engagement: the importance of connecting to your community 


We will also hear testimonials from parents who have gone through the journey of having a child with a rare disease. 


This event will be packed with information to aid you and your loved ones in navigating rare disease during the pandemic and beyond. You don’t have to do this alone.



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