Dear SDS Community,

We are launching a virtual event series to connect the community with experts in a conversation. 

The goal and vision for this program is to connect SDS families with SDS experts to build a powerful network working towards therapies and cures. Living with ultra-rare diseases like SDS can feel very isolating, the science can feel overwhelming, and knowledge and connection make us stronger.

Every second Sunday of the month
11pm PT (LA) · 2pm ET (NY) · 7pm GMT (London) · 8pm CET (Paris)

Please use this page to register, and we will send you the login details before the next meeting.

See you soon!

Your SDS Community organizers

Connect@SDSAlliance.org