One Million Steps Closer To #CureSDS

Sat, Oct 24th 2020 at 12:00 AM EDT · By Shwachman-Diamond Syndrome Alliance
Date & Time
Sat, Oct 24th 2020 at 12:00 AM EDT
to
Mon, Nov 2nd 2020 at 12:00 AM EDT
Event Details

It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research!

T-shirt sales has ended. If you missed it but would like to encourage a second batch, please email us at connect@SDSAlliance.org.

If you are looking to donate to accelerate SDS research, without participating in the fun run/walk, please do so here.

With this fundraising campaign, we are raising funds to accelerate therapy and cure development for Shwachman-Diamond Syndrome, a rare genetic cancer predisposition disorder that affects thousands of children and adults world wide.

Shwachman-Diamond Syndrome Alliance's mission is to enable and accelerate therapy development and a cure for SDS - in particular to eliminate the deadly leukemia risk in SDS - in a time frame that matters to our children and thousands of SDS patients world wide. Our focus is research and development: we raise funds for the most cutting edge research, build collaborations globally, and invest into critical research tools and infrastructure, now.

How to participate in the "One million steps closer to #CureSDS" fun run/walk:

One million steps is certainly too many for any single person. But together, the steps add up. We can get there!

1. Register on this page. 

Additional donations can be added with the option below the registration options. You will automatically receive a receipt for tax purposes right after checkout. 

Extra credit: check with your employer is they offer employee gift matching. This can allow your donations to go twice as far.

2. (optional) Start a team. 

If your team members want to participate in the fun run/walk with step counting, 

  • invite your team members to register on this page. Use the built-in social share buttons to spread the word. Your team members will be able to specify your team name when they log their steps (see step 3, below). They will receive an email about how to log their steps. Or, 
  • Ask the SDS Alliance events team to create a copy of this events page specifically for your team, customized to your team. Email us at connect@sdsalliance.org.

If you would simply like to fundraise for this event without your team participating in the actual fun run/walk with step counting, 

  • they can make a donation on this page without registering. Or,
  • you can set up your own, custom fundraising page. It is really easy! To create a simple per-to-peer fundraising page, use the "I Want To Fundraise For This" button on the campaign donation page here. It's just below the donation form. Follow the few simple steps, and customize the page if you like. Then use the built-in share buttons to share your page via email, text, Facebook, Twitter, or any way you like. Your network can simply donate on your fundraising page, and donations will automatically be routed to this fundraiser / SDS Alliance. Donors will automatically receive a receipt for tax purposes.  

3. Count and log your steps.

In the time period between October 24th and Nov 1st, count your steps with your favorite device/app. Registered participants will receive the details about how to log their steps and  enter it into our leaderboard tool (count.it). 

Since the event is virtual, there are plenty of safe options, observing any recommended COVID-19 precautions. You can even do the challenge at home.

That's it!

Winners:

Each and every dollars raised helps us getting closer to a cure. In addition, the individual and team leader who individually or as a team raises the most funds and/ or logs the most steps (so a total of 4 winners) will receive special recognition on our social media sites and a little gift as a token of our appreciation. 

Questions / Comments?

Contact us at the SDS Alliance: connect@sdsalliance.org or +1-617-329-1838

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