Registration is now closed. The summit was a huge success.

To access the recordings, log in to the meeting platform.

For assistance or to request access, email Ashley Ferreira at outreach@SDSAlliance.org.

SDS POPS: 
Shwachman-Diamond Syndrome Patient Advocacy and Partnering Summit

The first-ever, global, virtual summit to bring all SDS stakeholders together and provide access to cutting-edge scientific and medical information.  Agenda and updates at www.SDSAlliance.org/pops

- Featuring speakers from around the world

- Automatic caption translation into 20+ languages

- Abundant networking and connection opportunities

- Debrief on the 2023 SDS Scientific Congress (Cambridge, UK)

Free to all. 

Donations to support SDS Alliance programs are optional, but always appreciated.

Login instructions will be emailed closer to the meeting to all registered participants.