Welcome to the registration page for:

SDS POPS 2025

Shwachman-Diamond Syndrome Patient Advocacy and Partnering Summit

The first and only global virtual summit to bring all SDS stakeholders together and provide access to cutting-edge scientific, medical, and advocacy information.  Agenda and updates at https://www.sdsalliance.org/sds-pops

- Featuring speakers from around the world

- Automatic caption translation into all languages

- Abundant networking and connection opportunities

Free to all. 

Donations to support SDS Alliance programs are optional, but always appreciated.

Login instructions will be emailed closer to the meeting to all registered participants.

Preliminary Agenda

• 10am-12pm EST: Session I: Therapeutic Modalities - Focus on Gene Targeting Opportunities
• 12:00-12:30pm: Take a Break
• 12:30-2:30 pm EST: Session II: How can YOU make a difference? (From participating in all stages of research to fundraising with purpose and intention)
• 2:30-3pm EST: Screening of the SDS Documentary Film " Until There's a Cure"
• 3-4pm EST: Family Coffee Chat to connect (an extension of our monthly gathering)
• 4-5pm EST: SDS Adult Coffee Chat to connect (exclusive to adults living with SDS)

Questions and comments? Please email our team at connect@SDSAlliance.org